European Reference Network – Rare Neurological Diseases (ERN-RND) welcomes you to webinar ”Improving care of rare disease patients in Europe” as part of the Rare Disease Day 2021 campaign.
Confirmed speakers:
– Holm Graessner, coordinator of the European Reference Network for Rare Neurological Diseases (ERN-RND)
– Donna Walsh, executive director of the European Federation of Neurological Associations (EFNA)
– Sophie Bernichtein, project manager of BRAIN-TEAM in France
– Tobias Mentzel, patient advocate at ELA Germany
– Maria Judit Molnar, Professor of Neurology and director of Semmelweis University’s Institute of Genomic Medicine and Rare Disorders, Hungary
– Holm Graessner, coordinator of the European Reference Network for Rare Neurological Diseases (ERN-RND)
– Donna Walsh, executive director of the European Federation of Neurological Associations (EFNA)
– Sophie Bernichtein, project manager of BRAIN-TEAM in France
– Tobias Mentzel, patient advocate at ELA Germany
– Maria Judit Molnar, Professor of Neurology and director of Semmelweis University’s Institute of Genomic Medicine and Rare Disorders, Hungary
Their presentations will be followed by a discussion.